Category Archives: illness

Meet Carol Herron, Arts in Medicine Innovator

Carol Herron assists Charles Tomayo II with a "fish" art projectCarol Herron is one of many “invisible” heroes who collaborate with WITS.  Writers Amy Storrow, Darby Sanders, Melanie Melanowski, and I have had the pleasure of working with her over the last decade, and we can all attest to her professionalism, dedication to the arts, and calm demeanor, even when faced with  challenges such as Hurricane Ike and swine flu that increase the pressures of her job.

Carol, who oversees 70 volunteers who make 400 patient contacts a month, is the genius behind the Arts in Medicine Program at Texas Children’s Cancer Center.  Her path to Houston began in Columbia, Missouri, where she majored in psychology and dance at Stephens College and volunteered with Very Special Arts, a program that brings arts to children and adults with special needs.  She thought about being a dance therapist, but there were so few programs in the 80s that she decided to attend Texas Women’s University to earn a Masters in Recreational Therapy. In Denton she gained more experience working with children with special needs and developing arts curricula. Her first jobs out of graduate school were in psychiatric hospitals in New Mexico, where the work of designing arts programs and doing hospital administration often divided her attention.

According to Carol, the position at Texas Children’s Cancer Center is where everything fell into place.  Here she enjoys the perfect balance: access to patients and contact with the arts plus a way to use her administrative skills. Carol remembers, “I approached Texas Children’s Cancer Center and said, ‘I can do this. I know both worlds.’  I started at half time and within a few months I was full time.  I was told to grow the program and make it the best, so that’s what I’m doing. One of my first patients is now a psychiatrist at the hospital!”

Carol understands how her program makes a difference on a daily basis, and this is what motivates her through the tough times.  She explains, “When you walk into a child’s room and ask him to turn off the TV and do pantomine or write a silly poem, it’s risky, but the reward is hearing him—and his parents—laugh, the way they would laugh if they weren’t in a hospital.  The reward is watching that child  reach for a sketch book or journal, instead of the TV remote, when we leave. That’s what makes it all worth it.”

WITS shares Carol’s commitment to the arts.  As she likes to say, “The art, whatever it is, is a means to an end.  It’s different for every child because all children are different.  Our program allows children to be kids and to make choices that are theirs. That’s empowering for everyone.”

* Thank you to The Periwinkle Foundation, which pays for the WITS program at Texas Children’s Cancer Center.

All the Things My Mama Does for Me

mothers-day-breakfast-by-javanutmomMy mama combs my hair every day
My mama cooks fried chicken for me
My mama gives me a hug when I’m sad
My mama gives me oranges, apples, and grapes
My mama washes my dresses for me
My mama reads books to me at the hospital
My mama colors pictures with me
My mama takes me to the beach
My mama named me China because she thought it was beautiful

By China, 2nd grade
[photo by javanutmom via flickr]

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This poem is featured as part of the 2009 A Poem A Day campaign, a National Poetry Month celebration by WITS that features a different poem by a WITS student every day during April. Click on the logo to the left to learn more.

The Power of Dance

I’m really passionate about dancing. I’ve been dancing since I was 4 or 5. No one I knew was a professional dancer, but I didn’t need a role model. Whenever I heard music, I just wanted to move. At my elementary school I took an after-school elective in dance. It was just fun for me at the time, but my teacher had danced at the MET and said I should develop my talents and explore more kinds of dance. I had another teacher who had a group called Dance Force, and one day she invited me to dance with them, but it wasn’t the right time for me, so I turned them down. I just kept taking after school classes until middle school when I did drill team. Then I knew I wanted to dance somewhere besides school. So in high school I was invited again to dance with Dance Force and this time I accepted.
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Dance Force was a great experience because they experiment with many kinds of dance so I was exposed to a wide range of styles. One day I did a performance called Dance Houston and there I discovered a hiphop group called Marvelous Motion and it was like nothing I’d ever seen. The dancers had such tight control of their bodies, and they didn’t use vulgar movements to draw in the audience. That made a huge impact on me. I ended up trying out and making the group, which was awesome. The director really took me aside and helped to train me. I came in extra just to soak up everything I could, and it all paid off. It was transformative. I was part of a group where I could dance on the back row, and it didn’t matter at all because the collective movement was so powerful.

Through all of this there were times when I couldn’t go to practice because I was too sick. That was difficult. That experience inspired me to want to help kids who are really active but are going through serious illnesses and have to miss practice. I want to create an organization for those kids that focuses on their talents instead of how often they make it to practice. I also want to have counselors in place because I know how it feels when friends make fun of you because they don’t understand your problem. I want kids to know that when this happens, it’s not because those people are terrible; they just don’t understand. The counselors would help by giving the kids in the program a way to explain to their friends what they’re going through emotionally. For me dance is my outlet. I’ve had multiple health problems but I’ve always been able to dance. It’s my lifeline, no matter what I’m going through. I will always dance, and I hope I’ll be able to inspire other kids who are equally as passionate as I am-.

By Hope, 19

Texas Chidren’s Hospital

[photo by realeoni via flickr]

Orange and Black

When I bite into an orange, the juice tickles my tongue.
Cockroaches crawl in the dark corners.

Pumpkins grow in big, beautiful pumpkin patches.
Bats fly in caves like the wind.

I see goldfish swimming in beautiful ponds.
The sky at night makes my eyes twinkle.

When I have a bite of tomato soup, it soothes my throat.
Licorice is my favorite candy of them all.

Tony the Tiger has the best cereal I’ve tasted.
Cows’ spots are the darkest shade of black I’ve ever seen.

Cheetos are the best chips I’ve eaten.
Car wheels speed down the long, black road.

When the sun sets, it is always the best time of the day.
I do the best tap dance with my tap shoes in my house.

Ronald McDonald’s hair is a very dark shade of red.
When I pick up dirt with my hands, it makes my fingers stick together.

Doxorubicin drips slowly into the IV to kill my cancer cells.
I have the best handwriting on a chalk board.

Carrots are my favorite type of vegetables.
I see black cats running to my house on Halloween night.

by Emily, 2nd grade
Texas Children’s Cancer Center

The Thousand Winds

Here comes the wind
blowing through my silk hair.
The wind is floating me up
in the sky and the feel of
clouds touching my injured body,
waking me up,
telling me Listen and
Look at yourself,
You’re fine,
and
No more injuries.

I’m being healed,
and I feel as if God touched my
heart and made me a beautiful dove.
Flying through the
baby blue sky,
now the
taste of
the wind
blows
through my mouth,
and wind makes
my imagination
go enthusiastically crazy.
Oh! how
great the breeze feels
through my white
silky feathers.

By Theresa, 3rd grade

[photo by RogerTheriault via flickr]

The Tree Turning Red

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The kind of person I was is not the kind of person I am.
Just a body,
A potato sack of nards.
A tree turning red against a blue sky full of mourning,
Summer is dying and so is my heart.
Voices flutter like the birds,
So free and blinded as their broken wings fight against the impossible,
Falling.

Sitting in a window is no way to live your life.
Sitting in a man is no way either.
Mother was sewing and pricked herself.
She didn’t forget to wince but she forgot to bleed.
She went to bed without talking and no food.
Bright white skin matching purple bags of restlessness awoke the next morning,
Only to find her children had been consumed by adulthood.

I sat feeling the summer kissed skin surrendering to the pink.
The pink soon darkened,
Slowly turning my skin red,
Then fell to white as winter sucked away summer from my mind and fall from my eyes.
Every night filling halls fat with loud voices,
Never talking,
Just yelling so that the truth could never enter their ears
Lies were slapping them blind,
Leaving them daft and retarded on the floor.

I went away from the tree turning red,
Never to see it again,
To experience its beauty,
Its hatred of the world around it dying,
Bending to the winter.
Somewhere,
Back there,
I still hear the yelling.

by Tracy Jayne, 12th Grade

photo by flummoxed1 via flickr

The Man on Go Lucky Lane

Mr. Happy was born on April 1st, and everyone said he was a joyful baby who laughed a lot. His favorite food as a kid was pancakes made in the shape of smiley faces and Fruit Loops. During the day he liked to spray water on people and work on his comics and cartoons. He told jokes to whoever would listen.

When Mr. Happy got older, he moved to a house on Go Lucky Lane. Why? Because he married a woman named Ms. Down. Luckily, Mr. Happy never got depressed being around Mrs. Down. Every day he woke up in a good mood. He drove his little matchbox car to the circus where he worked as a clown. He loved hanging out with his best friend Crusty. They bounced around, laughing and making noises like, “beep, beep, vroom, vroom.” For lunch they ate loads of Laffey Taffey. Afterwards they practiced tumbling and juggling.

At home in the evening Mr. Happy always watched America’s Funniest Home Videos. Then he watched Simpsons and Family Guy. When he got tired, he usually listened to some music. His favorite song was “Joy to the World.”

–a collaborative story by Trevor, Megan, and Patricia, high school patients at TIRR

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Poetry by Blanca

Poetry — it is something special, something that lets me know I’m safe. When I start to write poems, I think of something warm, soft, and cuddly. I think of things I can say to let other people know that they are also safe. But there is something very weird about poetry and me, because when I write poems I feel like I also have to hide them inside something, like inside a rock. If I were to hide poems inside rocks there would be mountains of poems. And if anybody were to want to read any of my beautiful poems, they would have to peel the rocks as if they were bananas. I would pick rocks to hide my poems inside because it would be like gold inside mountains.

by Blanca, 8th grade

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Soy Amada (I Am Loved) by Elizabeth

because
my mom
gives me shots
the chemo shots
so I’ll get better
she has to poke me
on the fat side of my arm
when she sees me get poked
she holds her breath
she’s so scared
she doesn’t want me jumping around
what if the needle breaks?

she is so scared
she hopes I will get well
I have two more months
soy amada
because I am almost done
with my chemo,
and I’ll go to Denver
though I’m a big chicken;
I’m scared of airplanes
my mom or my grandma
will sit close to me
to make me feel better
because soy amada.

by Elizabeth, 4th grade